Beckwith Wiedemann Syndrome

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(KPLR) - It's a name you're probably not familiar with: Beckwith Wiedemann Syndrome.

Dr. Jeffrey Marsh is one of a few doctors in the world that perform the tongue reduction surgery for patients suffering from Beckwith Wiedemann Syndrome. They go all over the world and do cleft lip and palate repairs in third world countries.

If you folks want to get familiar with the rare syndrome, visit this website: beckwith-wiedemannsyndrome.org