OMAHA, NE. (CNN) - It's rare that doctors come across a donor heart that will fit a one-month-old child.
That's why a baby girl recently became the first infant to receive a heart transplant at Children's Hospital in Omaha, Nebraska.
Now, Franque Thompson reports the girl's parents are taking extra steps to make sure she stays healthy.
This picture of baby Lainey Wilkinson was taken almost three months ago. Today she's free from those tubes and has already outgrown her foot imprints.
Lainey may be their first daughter, but she also made history as the first infant at children's hospital in Omaha to have a heart transplant.
Jeff Wilkinson, Daughter Survived Transplant: "When she came out and everything she was crying breathing on her own. Defeated all the stuff that they said she wasn't going to do."
After weeks of recovery in the hospital, the Wilkinson’s finally get to enjoy the comfort of their own home.
Franque Thompson, Reporter: "The moment you realize that everything's okay now, that's when the joy starts to kick in."
"These binders have every bit of information needed to make sure baby Lainey stays healthy, including a list of all medications she needs to take and their exact times."
Jessica Wilkinson, Daughter Survived Transplant: "We had to go through all different medications and what they were for and what side effects were and things like that so we knew what could be medicine and what could be signs of rejection."
Though her road to recovery includes different medicines and lots of time, Lainey's parents hope her story will educate others.
"We wanted to set that first, first people to do it so other families with similar problems know that it's okay to go through with something like this."
Now, the Wilkinson’s hope her heart follows her feet and fingers to healthy future.
Franque Thompson, FOX 42 News